It is a warm, safe, reassuring, family-centered place to live… a home exclusively dedicated to care for dying people and their families. Supportive care services are provided by the home’s paid staff as well as the hospice agency chosen by the resident. There is 24 hour personal care, supervision, and assistance “on site” at all times.
A community-supported home for end-of-life care is not a hospice, nursing home, hospital, or medical facility. Nothing about it is clinical or institutional. In fact, it has all the simplicity, ease, and familiar comforts of home. It does not compete or replicate services that already exist in the community. Instead, it is a long-awaited and welcomed solution; a compassionate and innovative residential living option that can be offered to a person who nears the end of their life and is unable to remain in their own home.
This home is lovingly and generously community-supported. Its strengths are found in its people and the cultivation of genuine enduring relationships. The dying person and their family experience a profound healing when surrounded and supported by an extended and involved community and the outpouring of their kindness.
First, and foremost, currently no such option exists. We have nursing homes and assisted living facilities but their model of care is mostly directed towards rehabilitation and long term care living. They are better equipped for the general care of the elderly and infirmed.
End-of-life care is a highly specialized field that often draws on a select group of caregivers who feel deeply called to this mission. They are especially gifted in their sensitivity and presence with the dying person.
The environment in an institution may not be conducive to the care required during the dying process. Although people frequently live out their final days there, most would prefer to die at home or in a home-like setting that wholeheartedly responds to the processes of dying, anticipatory grief, and loss.
Our home will serve people 18 years of age and older needing 24 hour end-of-life care such as:
In the beginning we will serve three residents each in private rooms. Our full capacity size in the later future will accommodate eight residents.
We will be opening our home in the fall of 2017 in a Interim 3 bedroom ranch on a farmette in York Township.
Our address is: 253 Cherry St York, PA 17402
The paid staff at our home will provide personal care and assistance to our residents. This includes meals, bathing, grooming, toileting, dressing, position changing, complete bed care, ambulatory assistance, transfer assistance, feeding, personal safety, laundry, and light housekeeping. The staff will be properly trained in medication administration and can offer symptom support and comfort measures at the guidance of the hospice team. Our staff serves as an “extension of family.”
The hospice provider / agency of choice will provide the medical-nursing care with regular visits from their interdisciplinary team just as they would in a person’s private home. The hospice agency will develop and direct the medical plan of care in cooperation with the resident, their family, and the staff at our home. They will also provide bereavement care for the surviving family members afterwards.
The volunteers will fill a multitude of needs. With the resident, they can provide companionship, a listening heart, assistance with writing letters, reading aloud, holding hands, maintaining a quiet bedside vigil, supportive interactions with family members, and child care assistance. With the home itself, volunteers can help with meal preparation, gardening, lawn care, running errands, answering phones, office and clerical assistance, light housekeeping, laundry, and maintenance. Volunteers will also help with fundraising, public relations, event planning, and committee work with the Board of Directors.
Our home will work cooperatively with the hospice agency that is personally selected by our resident. We will have signed agreements in place between our home and the hospice agency so that we are aligned in our efforts and goals of care.
York County has 13 hospice agencies and all are welcome to bring their patients to our home. Visit our Local Hospice Agencies page for more information.
As an independent non-profit organization we are open to all hospice agencies equally. We are committed to being a unifying resource in our community. We are confident in the greater good that can be accomplished when people and organizations come together purely to serve and offer more mindful and compassionate ways of living and dying.
Every person wishing to be employed or volunteer at our home will go through a formal orientation program regarding policies and procedures. A mandatory program will also be provided in order to learn how to meet the special needs of dying people.
All solid relationships are built on trust and open communication. This requires sincere and constant ongoing communicative efforts. The education and sharing between a home for end-of-life care and a hospice agency is paramount to the resident’s well-being and experience.
Quality of care and its timely deliverance for our resident will always be our first priority. Our role “as an extension of family” will be to advocate passionately for our resident for whatever their need. We will be fully compliant within the guidelines of medication management and be able to respond quickly to changing comfort needs.
We will welcome all people regardless of economic status, ethnicity, race, or religion who would like to be cared for in our home. However, each admission is determined by the person with "the most need and the least options", as well as the level of care required, safety concerns, and bed availability. Each person must meet the criteria for hospice services AND be under the care of a hospice provider / agency.
No. Most end-stage diseases are appropriate, such as heart, lung, liver, kidney, ALS, stroke, coma, and neurological conditions. Last year, cancer diagnoses counted for less than half of all hospice admissions nationwide according to the National Hospice & Palliative Care Organization’s (NHPCO) Facts and Figures 2014 Edition.
Yes, active tuberculosis. Other communicable diseases will be evaluated individually. Certain stages of dementia may be difficult to manage and will be evaluated on a case by case basis. Mental health issues that may threaten the safety of the other residents or staff will be declined.
A person can self-refer, or referrals can come from a family member, friend, a physician’s office, a hospice agency, one of our hospitals, other healthcare facilities, clergy, or social service organizations. A referral and admission to our home can even come from another state if a family wishes to move their loved one closer to them in York.
There will always be open visitation with the option of utilizing overnight accommodations. A sofa or recliner will be in each resident’s room. Helping to meet the needs of the family is part of the work we do. The family will be encouraged to visit and can participate in some aspects of care giving if they so desire. Families will find mutual support and connection with one another, if desired. This interdependent loving social environment (community) has great merit and is signature to our care model.
We believe that a beloved pet is family and that the bond shared between they and their owner is affirming and life giving. We will welcome visits with well behaved pets whose vaccinations are current.
The daily expenses in a home for end-of-life care are not covered by insurance. These services are non-funded meaning our home receives no federal or state money.Our daily fee will be $250, on a sliding scale based on need; however, we will welcome and serve everyone, regardless of ability to pay.
The costs for the “medical portion” of care delivered by the hospice agency are covered by Medicare, Medicaid, and many third party insurance providers. The hospice agency submits the bill for this portion of the care and is reimbursed accordingly. Our home will not be involved with the hospice agency’s financial transactions.
All of the community-supported homes for end-of-life care across the nation have successfully sustained themselves with careful and resourceful planning and the goodwill and generosity of the community. A combination of funding sources from grants, foundations, community development funds, benefactors, corporate giving, memorials, bequests, donations of appreciated stock, fund raising , events, and volunteer support have all helped to make this mission possible.
We are a 501(c)3 non-profit charitable organization. All donations and contributions are tax deductible to the fullest extent permitted by law.
Please call Pappus House at 717-893-5310 for more information, or mail your check to: Pappus House 253 Cherry Street York, PA 17402. You can also donate online.